Joshua is doing GREAT!!

Joshua is doing great, he is still on 1/8 of a liter of oxygen. He is still having trouble consuming milk by mouth, but is up to 11 lb. Joshua will be 4 months on March 9 !!

DOING GREAT ! !

We have been home for 13 days and Joshua is doing great, he is up to 10 lbs!! Joshua is not drinking his full bottle yet, but is drinking daily out of his bottles. Joshua will have a dietician, physical therapist and a nurse coming to our house to monitor his progress weekly. We are hoping and praying that his lungs continue to grow so he can be removed from his oxygen and monitor.

Joshua is HOME!!

It has been 2 very busy days for us back at home, but we are doing great.Joshua was fussy his first night home, we stayed up all night trying to soothe him. He did have a spit up after arriving home because of the long drive home. Joshua is attach to a oxygen tank and a monitor, it will take us a little time to adjust carrying it around the house.

Today Joshua had his first visit to his pediatrician, and everything looked great (weight, length, head size, color). The pediatrician has had CDH patients before and stated Joshua should be off from the oxygen/feeding tube hopefully no later than his 1st birthday. She emphasizes the only thing that can set him back is if he gets any bacteria infections (caused by germs).

We want to thank all the front desk receptionist for the nicu, nurses, doctors, specialist, surgeons and The Ronald Mcdonald House at Texas Children Hospital.

A very special thanks to the following nurses that were there for us....
Day: Sarah, Rossana, Robin & Nancy
Night: May, Esther, Allison and her partner the night Joshua arrived in the ECMO room.
You guys made it easy for us to sleep, we don't know what we would have done without you guys!

Thanks to the blue team doctors....especially when Joshua first arrived, we were soooooo blessed for having these doctors.
Dr.Jonhson, Dr.Rios, & Dr.Cho, they were there from the very beginning.

Thanks to Dr.Adam who delivered Joshua, and gave us so much hope during the pregnancy. Another very very special Thanks to Dr.Cass the surgeon who had a very big part in saving Joshua's life.

As we were getting ready to leave the hospital the doctors reminded us about how important it was to keep Joshua safe in order not to return back into the NICU. Practice good hand washing, keep sick visitors away and make sure for at least the next couple of months people who come and visit Joshua have there flu shot.

SO again we want to make sure everyone understands we would love for Joshua to meet you and he is ready when you are, BUT we ask that you do have your flu shot. We don't want anything to cause Joshua to be back in the hospital. Other then that we would love to see you and we appreciate you understanding us wanting to keep our baby as healthy as can be.

Going Home Finally!!

At this moment (1:13am) were "rooming in" and doing fine with Joshua. After rounds (9:00am) they will DISCHARGE Joshua. We are so excited that tomorrow 12-13-09 we will finally have Joshua home after 2 months. He also drank his whole bottle (2 oz) for the second time!!

We are thankful that he will have a full recovery in a few years. Many parents that we have met at Texas Children Hospital don't have the same outcome.

Big day tomorrow....

After rounds tomorrow (Tuesday) morning we will get a room in the hospital with Joshua to ensure the doctors that we are capable of handling his needs. We are very confident we will have a awesome day, and hopefully we will be heading home on Wednesday.

Joshua continues to eat 1 oz out 2 oz twice a day without and spit ups. He continues to gain weight and is up to 9lb 3 oz. We are excited that in 2 days Joshua will be at home with us after 64 days.

2 months old !!

Joshua is 2 months old today and hopefully this might be his last weekend at the hospital. If everything goes as plan we are schedule to leave on Wednesday. Joshua was given his 2 months immunization shots and passed his car seat test. We are continuously practicing using the G-tube every 3 hours.

Looking GREAT!!

Joshua is doing great after the surgery, and is starting to bottle feed. He is off pain medication and they have removed his IV. They have briefly trained us on how to use the G-tube but we still have the whole weekend to practice. We are very confident that we can manage the G-tube and the oxygen treatment.

We have been hearing great news:

• Pulmonary doctor "Joshua really doesn't need the nasal cannula but is better just to take it home for a few weeks"




• Developmental specialist " He pass the test, and is behaving just like a regular 1 1/2 month old baby"




• Neonatologist stated his last ultrasound came back normal, and there is no abnormality of the spine.