So far the WORST 24 HOURS EVER....

Since yesterday (Friday) late afternoon, it has been the WORST 24 hours ever! Joshua had/has a severe (deadly) viral infection that doctors were trying to fight all night till this early morning. They found two types of viral infections, one of them was making his internal organs collapse. We really didn't know if he was going to make it, all morning long doctors were giving him all they could to improve his condition. The infection was caused by the central line that was inserted by his groin area on day 2. The main problem was that the central line had to be removed, but Joshua had to get more IV's to replace the central line. Joshua's blood pressure was so low that they had to poke him more than 20 times to find some good veins. Eventually they found one on each arm and one on his forehead (looks awful). They have him on so many medications that they had to set one machine on his bedside. He changed so fast from Friday morning, even the nurses that seen him on Thursday could not believe how much he changed. His face is very puffy (due to retaining liquids) and has wires all over him. When the new shift (docotors/nurses)changed this morning (Saturday 7am) they too were also stun on how bad he looked, and told us that the infection was/is a very bad infection and could be deadly.

At this time his temperature is good and his numbers all look okay. We are in such a disbelief on how this viral infection changed Joshua's condition and has nothing to do with his birth defect. We would of never guessed that his surgery would have gone so well and recovery be going good and then for him to get sick from an INFECTION that again has nothing to do with CDH.

Slowly the doctors say he is getting better and fighting the infection, we will just wait till the morning and see what his doctors have to say at that time.

Asking for all the prayers, Thank you so much!

Two Steps Back TOO MANY.................

Well bad news........... Joshua had to go back on his oxygen tube, not because he can not breath on his own (he is great on his breathing). His test came back and he does have an infection in his blood. They are still running test to check where the infection came or is coming from but, at the same time they are already giving him antibiotic medication to fix his infection. The doctors decided to go ahead and put his tub back in because they did not want him to be working on his breathing and his infection at the same time. They said it might be too much for him to try to do at the same time.

His heart rate and temperature is back to normal but............like I stated before his tube is back in. So....................we are back to square one!

Two step back......

Yesterday was a great day, but today................ is a whole different story. Since 3:00am this morning Joshua has had a high heart rate of 210-220, but should be in between 100-200. The doctors assume it might be an infection or he might need more fluid. They have poked him a few times to get some blood, and now we are waiting for the results. If they have to continue giving him fluids, they will have to put back the oxygen tube back in. (2.22Pm). As of right now the doctors are going to give him a blood transfusion and wait another four hours to see how his heart rate is doing before they put the tube back in.

Our 1st Thanksgiving as The Lozano Family!

Joshua's tube was removed for the 2nd time (7:20am), we are just waiting for a blood test at noon that will determine how well his lungs are working. They inserted a nasal tube just to help him with his breathing since this is all new to him.

Have a great Thanksgiving day...













(12:33pm) UPDATE...The test came in and everything looks GREAT!! No More Oxygen Tube!

Not today....

Joshua's oxygen tube was not removed after all today due to his right lung. His right lung has too much fluid and they rather wait until tomorrow. Our doctors said this is very typical for CDH babies, and they do not want to rush him. The doctors want Joshua to be 100% ready, and they don't want another set back. Besides his right lung, Joshua is doing fine he is more calmed compare to yesterday. They also increased his milk intake since he is digesting it pretty well. Like the saying goes "For every one step forward there is two steps back" (something along those lines).

We only hope that our First Thanksgiving Day together will be one of our most successful and memorable one.

Continues to improve.....

Today was a preparation day for Joshua’s 2nd attempt to remove his oxygen tube that will occur tomorrow. They gave Joshua a steroid medication that will help his lungs open up more and took his pain medication away so that he can be fully awake tomorrow. Our doctors and surgeon continue to tell us that he is doing great.

He gained 3 more ounces and is keeping his milk in better (no vomiting). Joshua was introduce to his first pacifier, and took it most of the day. Also, today was the first day that Joshua was awake for a good portion of the day, but was crying (without the noise) half of the time.

2 WEEKS OLD!

The doctors removed Joshua’s oxygen tube this morning, but he was pushing his self too hard to breathe on his own. After a few hours the doctors decided to put back the tube and wait until Wednesday to try to remove them again. Joshua had a tough day, but continues to be a trooper. It was a very tough day for us having to watch Joshua struggle with his breathing but hopefully Wednesday will be a better day.


Resting after a rough day 11-23-09

Quite Sunday....

Joshua did great on Sunday, he was put back on milk and did not vomit. They did not remove his oxygen tube because the (weekend) doctor wanted his primary doctor to be present just in case something goes wrong.