Merry Christmas !! 2009

Joshua has continued to stay stable with his weight(8lb) and feeds (1oz). No changes over the weekend, we are still waiting to hear what date he will have surgery. We are hoping that Joshua will come home in 2-3 weeks.

Joshua received many gifts from family, friends, co-workers and nurses this Christmas. Thank you for the gifts and most important the prayers....

Christmas Day 12-24-09

No major reflux!

Joshua was very exhausted after his Upper GI exam. He didn't show any signs of having major symptoms of stomach reflux. He will not need any medication and will continue to bottle feed twice a day. We are waiting for the exact day Joshua will be going to the operating room to input his G-tube. The sooner he gets the G-tube, the sooner he comes home.


The doctors reminded us the importance of having Joshua away from crowds and other children due to germs. They said to keep up with the NICU rules by washing hands, using hands sanitizer and to limit the visitors.


Joshua continues to drink an average of 30cc a day and is almost 8lb!! He is very alert and will recognize daddy and mommy's voices.

Reflux...

Joshua will have the G-tube surgery sometime next week, he will also have a Upper Gastrointestinal (GI) tract x-ray to detect reflux (a backward flow of partially digested food and digestive juices). Last night Joshua consumed 31 cc !! This morning he took in 35cc!!

We pray he continues this pattern so maybe he wont have a G-tube inserted (MAYBE). Joshua did loose some weight last night but not a significant amount to worry about.

Surgery # 2...

Joshua is going to get a G-tube (Gastric feeding tube) before he goes home. The surgery has been ordered, we are now waiting for them to assign a date. It will take at least 5 days to heal, the nurses will train us on how to use and maintain it from not getting infected. The G-tube is not permanent but is needed till he is able to consume his total daily bottle feed on his own. They will also have to train us on how to use his breathing treatment and measure/insert medications (sodium,lasik). Joshua has a couple of other tests that has to be done before he can go home, so we still have no idea how much longer he will be at TCH.

The good news is that his right lung has improved but they will continue to keep an eye on it. He also passed his hearing test and is digesting his food very well.

Fussy day......

Joshua is consuming the same amount of milk, but has gained 2 ounces (7lb 13oz). They will take another chest x-ray to see any improvements on Joshua’s right lung. If they see no improvement they will have to insert a tiny camera to see what the problem might be.

Recently we have noticed that Joshua has been getting very fussy in the evening, after putting him back in the crib he settles down. We realized that Joshua does not like to be bothered and likes to be left alone (daddy personality).